Thank you so much friends, for sharing with us your thoughts, prayers and well-wishes. Isaac has come a long way since last week and we are all much relieved with where we are headed. We were discharged last Sunday from Nationwide Children’s Hospital in Columbus, OH. It was a long ride home as Isaac was still in a lot of pain and we were pretty nervous about what we were in store for.
We saw the local hematologist on Tuesday and he upped Isaac’s warafrin and continued his lovenox shots. Lovenox shots hurt like crazy and really suck. Isaac’s mood was in pretty bad shape and his pain continued for several days. One day, I can’t remember which, a lot of his pain just went away and he was able to move about a lot better. Each day we see improvement and he can walk short distances and almost looks normal in his gait.
We have had a few more blood draws and warfarin adjustments and things appear to be leveled out. That means no more lovenox too! That fact alone changed Isaac’s mood dramatically. Over this weekend, his appetite also returned. A co-worker of mine bought Isaac a multi-pack of candy bars and he has been plowing into that pretty hard. I am not sure how many healthy calories he has ingested but we have been pretty flexible in just about everything anyhow.
We have more blood draws, probably two a week for a few weeks and then we just wait and see what happens. Isaac has gotten into a much better place emotionally which means that Emily and I have also. His pain persists but it is so much better than it was so I think he is tolerating it pretty well. We don’t yet know how school will work and whether he will be able to sit/walk all day without support so we may have to deal with crutches. We have a few weeks before we worry about that anyhow.
I don’t know whether I am conveying it well, but we are so much better off than we were last week and Isaac feels a lot closer to normal. So friends, please keep thinking of Isaac and I’ll give updates as we get them!